Playing With Our New Camera!

So recently I won a competition to win a brand new camera from Pentaxand I won. Each month I will do a post about the photos I have taken with my brand new K-500. As I have only had it a day, we have just been having a play so here are some or my favs!

IMGP0010

IMGP0019

IMGP0018

IMGP0104

IMGP0012

IMGP0118

IMGP0117

IMGP0114 IMGP0110

IMGP0094

IMGP0068

IMGP0052

IMGP0063

IMGP0127

Yes, I took a photo of a bin, but in my defense, Hubby left me and the girls in the car for like five minutes and we got bored! I have already had much fun with the camera, but I have SO much to learn, get used to seeing many more photos! Thank you so much Pentax!!!!!

Getting Benefits Is EASY!

I have heard it so many times, getting benefits is easy. Well I have news for you, its not! 

Plus, we are not all ‘scroungers’ life is getting more expensive, the cost of living is rising beyond belief, and not everyone can have high paying jobs.

Like most things right now, you have to fight for it, you have to continuously provide proof of everything, over and over again. 

Its something that really gets me down and grates on my nerves. Its not the fact I think I think we have to have it, its the fact the numbers say we are entitled, so we do claim for them, however they are forever changing the goal posts, giving families so much more stress.

My husband has worked full time forever, literally and I worked myself until I was pregnant with Pops, now he has had to drop his hours to be at home for me more. When you inform one person, its all okay and changed. Then the next one in the change sees the change and thinks they are getting more money AND working full time, when really, its because you dropped. But to prove to that person you have dropped the working hours, you need wage slips. But to have wage slips you need to have worked it first.

Meaning you have to go two or three months with less money, a lot less, before you can prove you had the rise in one part was because of the drop in another.

It means you then start getting a little behind for those two months, giving you even more to deal with. Its catch 22.

I am really grateful for all the help we receive, but the truth is, we are only where we are today because we fight like hell to prove the truth, because sadly there are those who abuse the system, giving everyone who needs that help a bad name. 

Take the bedroom tax for example. We don’t even have a spare room!!!!!!!!

They have not thought of everyone’s circumstances and the fact they are all different, meaning we then have to fill out more forms and gather more information to fight it.

Its the same with the new disability payments, I fought to get the very minimum, I don’t use it for nice things, I use it to pay for the hospital carpark when there are no disabled spaces, and the petrol to get to the hundreds of appointments I have had. Now its even harder to claim, there are ‘categories’ are some people have to be interviewed by a Doctor, one that does not even know them.

Neurological diseases are so difficult to understand, not even my GP really gets my MS and the treatment I am having, so how can a complete stranger decided wether you ‘need’ the money or not?

Life is getting so much more complicated and it makes my eyes water!!!

But I Don’t Look Sick?!

I tend to find myself looking in the mirror and wondering if its all real. Its so odd because I just don’t look sick. Granted I look tired and the bags under my eyes are slowly turning into black bin bags but still, I don’t look sick.

People tend to forget hidden illnesses are equally as hard to grasp for the person who has it, as well as the passer by who simply doesn’t know better.

I find myself sitting and wondering whats going on in my head, I have been keeping myself busy because I know too much thinking can be bad, because thinking leads to wondering and wondering leads to all kinds of crazy shit!

I guess recently I have been feeling a  little low, I have so much to do, and I just cannot find the want to do it. But, at the same time I do want to do it?! Nah, I don’t get it either. 

I find it hard to express the way because “I’m tired” doesn’t cut it, but it seems to be my answer of choice. I guess no one really wants to hear that I have chronic fatigue and today, it hurts like hell.

Hey, I even tried to push myself this week, it was for personal gain as well as the family. I figured maybe I need to do more? Turns out doing more just makes things worse, it pushes you to that wall, the one you cannot go over ,under or through, so you just sit there sobbing and smelling like an old bag of potatoes. 

And lets face it, that’s not fun for anyone.

Its hard some days, not having someone who really understands. People try and I appreciate it, but some days you just want someone who feels that pain, who has hips and a bladder like yours, who understands MS and feels it too.

Some days you just feel so ‘meh’ like nothing is worth moving for, you just feel so empty.

I like to immerse myself into the girls, TV or the online world, so for a second I can take a step back from who I am and feel nothing for a while, but it is more of a something nothing as apposed to an empty nothing.

For me, by far the hardest part right now is looking in the mirror and feeling like a complete stranger. One who is not alone behind those eyes anymore, but at the same time, you just cannot see it.

Disney Teen Beach Movie

What girl doesn’t like a teen musical?! Well, every girl in this household was more than excited when we heard that Disney Teen Beach Movie was being released.

Even better we were sent some goodies so Pops and her cousin could enjoy it in style and even feel like one of the gang.

teen beach movie

When Mack and her boyfriend Brady going and catch that last wave before he gets shipped off to boarding school, they end up being transported into a very ‘west side story’ esque time.

Basically,its bikers vs surfers, throw in love, rivals and music and you have one very up to date west side story film! With plenty of catchy music (thanks for that Disney) and the fact they have to find a way to get back to the ‘real life’ made for two very excited and enthralled girls. Wrapped in in there Teen Beach towel and clutching a signed photo, this movie was the perfect Disney hit for the summer.

 

DSCN0420

DSCN0421

 

As we remembered to set Teen Beach movie to record when it aired on the Disney channel we have watched it until we are blue in the face, signing along to the fab tunes, I can see the soundtrack making its way to the Christmas list!

If you haven’t already seen this movie, then keep an eye out on the Disney channel for it, it got a massive thumbs up from us!

 

 

Novi Stars Comp!

Novi Stars are the girls from the stars who have landed on Earth to try new things, update our fashion trends, and make some new friends along the way!

They combine outrageous, out-of-this-world adventure, with cutting edge toy features never seen before in doll play. Each character has unique cosmic quirks that help express the ‘stars’ within themselves. They may look a little different on the outside, but inside they are just like any other Earth girl. Each Novi Stars™ character is completely different from the last, with amazing cosmic features, sparkly glass eyes and glitter lashes.

 Novi-Stars-Doll-Asst#274580_LR

The four unique characters available to collect in the range are:

–       Alie Lectric™, who is very bright and has a translucent green body, which lights up  to reveal multiple cosmic colours

–        Una Verse™ is a real diva with a clear body filled with glitter and water

–        Mae Tallick™ is a huge superstar with a metallic body, who speaks cosmic phrases with her robot-like voice

–       Ari Roma™ is super sweet with her own bubble-gum scented atmosphere and removable bubble helmet. Her body is encrusted with pink glitter

Each doll comes with a galactic pet, a glow-in-the dark doll stand and the package handle even becomes an antenna headband for girls to wear.

 

Novi Stars dolls are priced at around £19.99.

I am giving you the chance to win your own Novi Stars doll!

(2 winners will win a Novi Stars doll Uk only)

a Rafflecopter giveaway

Win competitions at ThePrizeFinder.com
Free to enter competitions and giveaways in the UK. Win great prizes and freebies.