Another Reason Why Being A Multiple Sclerosis Mum Is Hard

So, I have decided to open up about something I find very hard, even harder I guess having a disease like multiple sclerosis.

Motherhood and MS don’t really go well together. They are far from a match made in heaven and something I will always struggle with, even more so now with Pops growing up.

She she starts school in September. I know its still a way off, but its coming. Its just another big change we will have to deal with as a family.

Until now, I have not told too many other parents I have MS. I have left them to find out on their own, partly because its very taboo still and partly because its my life and my business.  Those who do have spoken to me, they have asked me questions, which is always good and they have offered support. Especially playgroup.

Now Pops will be getting ready for school, she will change. She will grow up that little bit more and we will have to deal with a whole new set of problems.

She will not need me. She will not be here as much. She has to go to school, unlike playgroup where they understand that sometimes, I just want her home, with me. 

Pops is four, she drives me nuts and all that crap but she has been there since day one of all this. She has held my hand and watched me cry, she understands empathy alot more than any normal 4 year old. 

Now I won’t have that support, I feel selfish for not wanting her to go to school, because it means I will have to face more things alone. I should be looking after her, truth is, she is the one who does alot of looking after.

I know I have plenty of time to prepare myself, but it won’t stop me from being sad. I love the fact she is growing up, but as she does, she will change and need me less and less.

I just hope I don’t end up needing her more and more. 


6 thoughts on “Another Reason Why Being A Multiple Sclerosis Mum Is Hard

  1. Remember that your her mum and she does not no any different. The princess is at school and in her class there’s a girl, her good friend, who’s dad has MS. Us adults benefits from that but certainly also the children does. The princess and her friend help each other when it’d tough to have a diabled parent and they talk about how they feel. They understand what the other one goes through. There is a lot more out there with disabled parents, parents with diabetes, depresion, broken backs and stuck in wheelchairs and lots more. I’m very open about having MS because I believe it’s the best. Then people know they can talk to me and not about me. I only have good experiences with being openminded and smiley. I have never felt any taboo about MS in England or in Denmark but maybe that’s because I’m very open about it all. You’ll be alright and she will cherish her moments with you:) Have a lovely Sunday x

    1. I try and be open, but I just find it hard. I am always chatty and friendly, I like meeting new people. That sounds amazing, I dont think pops will be that lucky. I know I shouldnt rely on her so much but I do, I just cant help it xx

  2. Sweetheart, as she grows up she’ll need you always. You will strike a balance on how much that is, but so long as you’re there, you will always be her mum, that one person in her life that she can talk to about anything. Though as the teen years start that doesn’t necessarily mean they will talk to you about anything!!

    You’re a wonderful mum and you’re doing the best you can. To know that your beautiful girl has more understanding of your condition, and therefore of disabilities in general, is an incredible strength, and she will grow up to be admired and loved by many. I wish many more children had the chance to understand disability because the world would be a much easier place in which to live.

    CJ x

    1. Thank you, that is so true, its something I am holding close, knowing she will always be understanding and accepting of people, no matter what. I want to be the all singing all dancing one, but I simply can’t. Sometimes its hard to take xx

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