I Have MS And I Am Too Expensive, Take 2

I felt it only right to post an update here regarding my post here.

Today I met with the housing association I am currently a tenant under. They were really nice, they were also shocked at what has been said. However their hands are tied by what Home choice plus, the department which deals with housing and decides on banding  and room numbers, say.

This is run by my local council, Wychavon district council.

Whom have a duty to make sure my family are adequately housed. Which we are not.

They refuse to look at separate situations for what they really are.

After all, no two families are the same. 

I have provided all the evidence I can, which I really hope they have read. But due to their decision, it looks like it may have had a quick skim at most.

I live in the middle of several counties. So we have many different LHAs around.

One of which was the one who reiterated that I would not be put in a new home, because they didn’t want them changed. She said it to me like it was something I should have known. Like a given thing?

More than likely taking their script from Home choice plus.

As time moves on I am tiring of fighting.

If its not the benefit system, its housing and vice versa.

When will the people who are meant to help, realise that no two cases are ever the same. And actually listen to each person and their needs.

Instead we are all grouped together. Expected to repeatedly prove ourselves and jump though as may hoops as they feel like throwing.

How is that fair?

Daily I have to be reminded I am never getting better, yet I will spend every few years fighting the same fight over and over again.

When will they realise lifelong means forever?

I will never get better, never be the same.

I do all the tests, have all the scans and go through all the prodding for  what?

For the government of course. Because without that proof, I would fail to jump though those hoops any more.

It has gotten to the stage where its not even for me.

When did society become so cruel?

because one again, I have MS and I am too expensive.



Dear Mr Cameron.

Dear Mr Cameron,

It’s been a long time coming, this letter to you.

The voting slips came in the post and I didn’t really know what to do.

Which box should I tick?

Do I close my eyes and just do it quick?

Or do I talk it through and deliberate for a time?

See Mr Cameron the decision is important to me,

My vote counts and I feel its about time you stand up and listen to the people who you just don’t see.

I understand there is no quick fix,

But did you have to pull the most vulnerable into this mix?

See it’s people like me Mr Cameron who are suffering the most.

Because its people like us who are least likely to boast.

A free car, a blue badge and undeserved money?

When in reality that is simply just not funny.

Mr Cameron Sir, have you ever been unable to work?

Have you sobbed so hard at something that does nothing but lurk?

Have you been told there is no cure and slowly your body will break down and fail?

That no matter how hard you try or scream or cry or shout you just can’t cope with something of such a massive scale.

Have you ever been told, Mr Cameron, that they just don’t know why?

Why you are where you are and how you can do nothing but cry.

Cry at the unknown life you and your family will face.

Cry that one day you will be a shell of who you are with your inevitable fall from grace.

Of course Mr Cameron I am talking about the changes to the benefits for the disabled.

The people who are just not physically abled,

To fill in your forms and attend the interviews to prove I am what I say I am.

Are you surprised in the lack of reapplications from the people of whom you don’t give a damn.

The people who struggle to get out of bed,

The people with that monster lurking in their head,

We already struggle to function each and every day

So why Mr Cameron do you make this the way?

Where we exhaust ourselves worrying about that money,

When our lives will forever be far from sunny.

Can’t you help us try and be all we can?

And do it from the moment this all began.

Because Mr Cameron we can’t take anymore.

We need help to survive, to get through the damn door.

So Mr Cameron If you want my vote,

Help the disabled, believe what I wrote.

Put yourself in my shoes and try and understand,

This is not at all what we all had planned.

Make the services and benefits fully accessible,

Because any more of this fight would be reprehensible.


Getting Benefits Is EASY!

I have heard it so many times, getting benefits is easy. Well I have news for you, its not! 

Plus, we are not all ‘scroungers’ life is getting more expensive, the cost of living is rising beyond belief, and not everyone can have high paying jobs.

Like most things right now, you have to fight for it, you have to continuously provide proof of everything, over and over again. 

Its something that really gets me down and grates on my nerves. Its not the fact I think I think we have to have it, its the fact the numbers say we are entitled, so we do claim for them, however they are forever changing the goal posts, giving families so much more stress.

My husband has worked full time forever, literally and I worked myself until I was pregnant with Pops, now he has had to drop his hours to be at home for me more. When you inform one person, its all okay and changed. Then the next one in the change sees the change and thinks they are getting more money AND working full time, when really, its because you dropped. But to prove to that person you have dropped the working hours, you need wage slips. But to have wage slips you need to have worked it first.

Meaning you have to go two or three months with less money, a lot less, before you can prove you had the rise in one part was because of the drop in another.

It means you then start getting a little behind for those two months, giving you even more to deal with. Its catch 22.

I am really grateful for all the help we receive, but the truth is, we are only where we are today because we fight like hell to prove the truth, because sadly there are those who abuse the system, giving everyone who needs that help a bad name. 

Take the bedroom tax for example. We don’t even have a spare room!!!!!!!!

They have not thought of everyone’s circumstances and the fact they are all different, meaning we then have to fill out more forms and gather more information to fight it.

Its the same with the new disability payments, I fought to get the very minimum, I don’t use it for nice things, I use it to pay for the hospital carpark when there are no disabled spaces, and the petrol to get to the hundreds of appointments I have had. Now its even harder to claim, there are ‘categories’ are some people have to be interviewed by a Doctor, one that does not even know them.

Neurological diseases are so difficult to understand, not even my GP really gets my MS and the treatment I am having, so how can a complete stranger decided wether you ‘need’ the money or not?

Life is getting so much more complicated and it makes my eyes water!!!