The nurse arrived about 9.30am and set up all the gubbins needed for the three day infusion!
Then came the time to find a vein.. I dread this. See my veins are practically non-existent, no amount of pumping or squeezing helps! After digging about under the skin for like 3 mins I suddenly felt like I might faint, I asked to stop and ran to the toilet, where i proceeded to throw up. Now im not scared of needles by a long way, the amount of tattoos i have proves this, but the thought of someone digging about under my skin makes my stomach turn.
So after throwing up and getting a drink we decided to go and put my arm under HOT water, as hot as you can stand I was told and I like my baths hot so this was no issue, theres nothing I like more than looking like a salmon after a nice bath!
Then she had another go, then another, then another then yes another. I felt awful for her as so was so determined to get a line in, it was just not going to happen! After much pumping and making a hot water bottle she decided to give up and call a different nurse, the nurse agreed to come and the nurse who was already there left.
The new nurse came and again I told her to please not warn me with ‘sharp scratch’ as I dont need to no! Im poked often enough to just sit calmly and let them try. Sure enough she got the vein immediately, only downside is its on the bend of my elbow and as its in for three days doing jobs and holding my little one is extremely tough going.
The methyl Pred drip was soon started and it took an hour to drip through! There was an odd uncomfortable silence between me and nurse lady!We watched channel 5 and clocked watched. She repeatedly did the normal blood sugar checks and took my blood pressure! Which is always A ok!
Now im sat with my arm bandaged up with sticky plasters all over my hand from the first nurse. I have a vile metal taste in my mouth, so all food and drink tastes VILE! I am very tired and hoping the next two days go quickly without any more issues! im not sure if I can take anymore prodding, even if i no its for the best. Theres not really too much to report now as i simply feel drained and useless!
It is days like today and yesterday that make you remember just how unexpected and volatile MS can be.
You can be quietly getting on with things minding your own business, then BAM! Your hit with extremely extreme fatigue, dead feeling legs whilst trying to tackle to always scary stairs and tremors when you are trying to eat your tea and simply relax. Especially not nice when you have guests for tea.
I have to say i did not think I could possibly feel any worse until the previous evening. I knew i needed to go to bed but I have two young children, so that is easier said than done. Wait… yes… the tremors are back. Anyway… Luckily nanny was here and offered to take Beboo for the night so I could sleep and have some kind of a lie-in. I was very reluctant but I knew it was for the best, with all thats been going on nanny has been a god send, taking Beboo when I need five minutes or a night of pure sleep, even though Hubby is fantastic. But I just want to keep Beboo with me more, but last night I was at my wits end. I look forward to Hubby bringing her home this afternoon, after work.
So for the first time i am officially looking forward to starting steroids tomorrow, even just for the energy boost in about a weeks time! Today I will enjoy the rest and time with Pops before Hubby and Beboo return. At which time I will take my baby and cuddle her all night!
Stand by for more wining as I take on my next load of steroids, getting them on-board is by far the worst part!