For the first time in around 7 months I am feeling bare. Blank, achey and full of the symptoms I worked so hard to get rid of.
A word you associate with alcoholics or drugs users, but one that is used to widely in the medical world.
The perfect term to describe the pain.
Today I visited my neurologist, I needed his okay for steroids to speed up the recovery cycle for this relapse. My Neuro is one of the nicest medical professionals I know, bar my MS nurse and Hannah from the hospital. He always knows what to say and completely understands this illness. He knows my request for “sleep” means “please medicate me so I can sleep”
A harsh reality of MS is that we cannot be cured, but we can have access to some amazing substances to help us manage. I don’t believe humming a lot and eating organically will ‘cure’ me or anyone with MS. I believe in managing my symptoms and taking the necessary drugs to ease the pain, the lack of sleep and relentless depression.
People often forget, its going on below the surface. You might think you are ‘cured’ but in reality, an MRI scan could reveal an entirely different story.
Anyhow, Monday sees the IV team coming to the house so I can have my three day IV steroids.
Monday I treat my first relapse in 7 months. I am gutted it happened as I was doing so well. But at the same time, I know Tysabri only stops the frequency of the attacks. It doesn’t stop them all together.
So I did well to get this far. Right?